ATS was first documented in the late 1960's. The team at Ghent University Hospital found the gene mutation in 2006. It wasn't until 2014, A Twist of Fate-ATS was founded. This has lead to a great team effort from patients, families, specialists, and researchers to work together to find the answers for ATS. Please watch the documentary on ATS:https://youtu.be/KRtLYjDVdQ8
There is a CME program for medical professionals to learn about ATS, a mouse and zebra fish model, natural history studies and more being done for ATS.