Sue's interview
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How did all start?
With a cough
Do you already have a diagnosis? How long did it take you to get it?
Diagnosis took 3 years
For what medical specialties have you been treated? What has been the most useful specialty for your?
Infectious Diseases Respiratory Immunology
What has been the most useful thing for you so far?
Keeping on working
What have been your biggest difficulties?
Weight
How has your social and family environment reacted? Have your social or family relationships changed?
Family members had to take on more housework than before as I just did not have the energy to do it all like before I got sick
What things have you stopped doing?
I try not to let it stop me doing anything
What do you think about the future?
Don't look to far ahead
So far, which years have been the best years in your life? What have you done during them?
Now, I am here, in a type of remission and enjoying my family
What would you like to do if you didn’t have your condition?
Plan for my long term future
If you had to describe your life in a sentence, what would it be?
Struggle
Finally, what advice would you give to a person in a similar situation?
Find out all you can, then try to keep life as normal as possible
