Tim2dive's interview
Error
How did all start?
Started in May of 2017 with what was diagnosised as bronchitis. Had cough, difficult breathing, low grade fever. Took antibiotics and fever and some of the cough (dry more most part) subsided. Then few weeks later, symptoms were back. Antibiotics again and symptoms subsided. Then I had a full body MRI done for unrelated problem and radiologist noted a spot on right upper lung lobe and from there, CT, bronchialscpoy, CT guided biopsy all negative for cancer but not checked for fungus. Did have blood lab for Valley Fever (I work in AZ.) negative results. PET Scan showed the mass and two lymph nodes as acitive. So, VATS Resection and lymph node removals was done 4 Jan 2018.
Do you already have a diagnosis? How long did it take you to get it?
Invasive Pulmonary Aspergillosis. It took 9 months to get diagnosis for the fungus infection. This was determined from tissue sample culture post-op.
For what medical specialties have you been treated? What has been the most useful specialty for your?
Pulmonary, radiological, infectious disease and Thorasic Surgeon. Most useful in regards to diagnosis was Surgen.
What has been the most useful thing for you so far?
Taking Gabapentin for my nerve pain
What have been your biggest difficulties?
Intercostal Nerve pain and persistent dry cough
How has your social and family environment reacted? Have your social or family relationships changed?
Well
What things have you stopped doing?
Everything except walking
What do you think about the future?
Hopeful for full recovery
What would you like to do if you didn’t have your condition?
Return to scuba diving
If you had to describe your life in a sentence, what would it be?
A life blessed with love and support.
Finally, what advice would you give to a person in a similar situation?
Ensure your biopsies are checked for “all” fungal diseases at same time they look for cancer activity
