- Aspergillosis
- Interviews
Claudiahobden's interview
How did all start?
Numerous chest infections / exacerbated asthma , about 2 years after moving house into a very damp bungalow
Do you already have a diagnosis? How long did it take you to get it?
Yes , 18 months
For what medical specialties have you been treated? What has been the most useful specialty for your?
Aspergillosis bronchitis
What has been the most useful thing for you so far?
Being in touch with a professor in the field
What have been your biggest difficulties?
Recognition of the disease and the unfortunate fact that it is immune to the treatment
How has your social and family environment reacted? Have your social or family relationships changed?
As I still work full time I am exhausted and therefore unable to see friends as I’d like anymore . My husband is worried sick as we witnessed my dad die of this . We have moved house to reduce cost incase one of us needs to stop working . I was really fit and have stopped all excercose due to exhaustion
What things have you stopped doing?
Gym
Seeing friends
What do you think about the future?
Very scared and uncertain
So far, which years have been the best years in your life? What have you done during them?
My 20’s and 30’s as I went to uni and had my family
What would you like to do if you didn’t have your condition?
Travel and continue to exercise
If you had to describe your life in a sentence, what would it be?
Very uncertain as my disease varies daily , take each day at a time
Finally, what advice would you give to a person in a similar situation?
Seek expert help as local hospitals don’t know enough about this condition to treat it
