Chronic Pulmonary Aspergillosis
Had right upper lobe removed due to a Aspergilloma
Continued to be poorly and eventually refereed to Professor Denning at Wythenshaw who diagnosed me after various tests.
Started first anti fungal treatment Itraconazole which after 8 months started to give me muscle damage so stopped.
Tried Voriconazole - after a few weeks heart rate changed dramatically so was stopped.
Tried Pozaconazole, wasn't working and I became more infected.
Had lung biopsy
1st picc line with daily treatment of Ambisome every day for 3 weeks.
Waited over a year for the new drug to become available Isavuconazole
Been on Isavuconazole over a year, not working as it should picc line again this time micafungin every day for 3 weeks and started gamma interferon injections - been on this since June.
So sorry to read your story ð I pray the new drug erratics the fungus. I just starting the journey. VATS Resection of a mass and two lymph nodes removed. Then culture came back as aspergillosis. Hoping voriconazole does the job ð
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