Living with Bardet-Biedl Syndrome. How to live with Bardet-Biedl Syndrome?

Can you be happy living with Bardet-Biedl Syndrome? What do you have to do to be happy with Bardet-Biedl Syndrome? Living with Bardet-Biedl Syndrome can be difficult, but you have to fight to try to be happy. Have a look at things that other people have done to be happy with Bardet-Biedl Syndrome

2 answers

Learn all you can about your particular BBS diagnosis.
Mobility training, guide dogs, confidence and independence are essential as well as friend and family support.

Posted Sep 14, 2017 by Tina 1000

Try and live a close to normal life.

Posted Jun 16, 2019 by Bardet-Biedl Netherlands (Bendert & Nienke) 3150

Living with Bardet-Biedl Syndrome

World map of Bardet-Biedl Syndrome

Find people with Bardet-Biedl Syndrome through the map. Connect with them and share experiences. Join the Bardet-Biedl Syndrome community.

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Stories of Bardet-Biedl Syndrome

BARDET-BIEDL SYNDROME STORIES

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MY BBS STORY

Hi my name is Ryan, im 14 years old and have BBS1. My main struggles are my weight and my vision, i also have been diagnosed with Autism and MR. I got my genetic diagnoisis of BBS about 2 years ago. I have night blindness and have negative 14 i...

928

1/26/16, 4:47 PM by Ryan Forsblade

ORLANDO

Have a 20 year old son with the syndrome. He is BBS 10, no health issues, mild obesity and his vision is almost all gone.

756

12/30/15, 11:57 AM by Ingrid

MARY'S STORY

Please register your BBS loved one in CRIBBS! [email protected] We have a Center of Excellence for Treatment of BBS, Located at the Marshfield Clinic, contact the director, Dr. Bob Haws, [email protected] for deta...

731

12/30/15, 3:32 PM by Mary

HELLO!

Hello, my name is Bea. Maried with my great and loving husband, Marco. Together we have three children. Tamara, Bart and Bas. Bart en Bas are twins. Tamara en Bas have BBS. It was great to see this map with all this people with BBS! I could show Ta...

686

1/27/16, 9:20 AM by Tamara en Bas Brinkman (30 augustus 2000, male)

BARDET-BIEDL NETHERLANDS

Our oldest son has Bardet-Biedl Syndrome (BBS). We are setting up a family foundation in the Netherlands for BBS. Contact us: [email protected] Check our website: www.bardetbiedlsyndroom.nl

681

6/16/19, 9:19 AM by Bardet-Biedl Netherlands (Bendert & Nienke)

Living with Bardet-Biedl Syndrome. How to live with Bardet-Biedl Syndrome?

Can you be happy living with Bardet-Biedl Syndrome? What do you have to do to be happy with Bardet-Biedl Syndrome? Living with Bardet-Biedl Syndrome can be difficult, but you have to fight to try to be happy. Have a look at things that other people have done to be happy with Bardet-Biedl Syndrome

Living with Bardet-Biedl Syndrome

What is the life expectancy of someone with Bardet-Biedl Syndrome?

3 answers

Celebrities with Bardet-Biedl Syndrome

2 answers

Is Bardet-Biedl Syndrome hereditary?

4 answers

Is Bardet-Biedl Syndrome contagious?

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ICD10 code of Bardet-Biedl Syndrome and ICD9 code

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Is there any natural treatment for Bardet-Biedl Syndrome?

2 answers

Bardet-Biedl Syndrome diet. Is there a diet which improves the quality of l...

3 answers

What is the history of Bardet-Biedl Syndrome?

2 answers

Find people with Bardet-Biedl Syndrome through the map. Connect with them and share experiences. Join the Bardet-Biedl Syndrome community.

BARDET-BIEDL SYNDROME STORIES

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