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Bardet-Biedl Syndrome prognosis

Prognosis of Bardet-Biedl Syndrome: quality of life, limitations and outlook, from research and from people who live with it.

Bardet-Biedl Syndrome prognosis
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The renal abnormalities are the main life-threatening manifestations because they can lead to end-stage renal failure and require renal transplantation. Progressive vision loss due to retinal dystrophy, together with moderate intellectual deficit (when present), behavioral anomalies, hypomimia and obesity will affect the social life of these patients.
Posted Jun 16, 2019 by Bardet-Biedl Netherlands (Bendert & Nienke) 3150

Bardet-Biedl Syndrome prognosis

Bardet-Biedl Syndrome life expectancy

What is the life expectancy of someone with Bardet-Biedl Syndrome?

2 answers
Celebrities with Bardet-Biedl Syndrome

Celebrities with Bardet-Biedl Syndrome

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Is Bardet-Biedl Syndrome hereditary?

Is Bardet-Biedl Syndrome hereditary?

3 answers
Is Bardet-Biedl Syndrome contagious?

Is Bardet-Biedl Syndrome contagious?

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ICD9 and ICD10 codes of Bardet-Biedl Syndrome

ICD10 code of Bardet-Biedl Syndrome and ICD9 code

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Natural treatment of Bardet-Biedl Syndrome

Is there any natural treatment for Bardet-Biedl Syndrome?

2 answers
Living with Bardet-Biedl Syndrome

Living with Bardet-Biedl Syndrome. How to live with Bardet-Biedl Syndrome?

3 answers
Bardet-Biedl Syndrome diet

Bardet-Biedl Syndrome diet. Is there a diet which improves the quality of l...

3 answers

World map of Bardet-Biedl Syndrome

Find people with Bardet-Biedl Syndrome through the map. Connect with them and share experiences. Join the Bardet-Biedl Syndrome community.
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Stories of Bardet-Biedl Syndrome

BARDET-BIEDL SYNDROME STORIES
Bardet-Biedl Syndrome stories
MY BBS STORY
Hi my name is Ryan, im 14 years old and have BBS1.  My main struggles are my weight and my vision, i also have been diagnosed with Autism and MR.  I got my genetic diagnoisis of BBS about 2 years ago.  I have night blindness and have negative 14 i...
Bardet-Biedl Syndrome stories
ORLANDO
Have a 20 year old son with the syndrome. He is BBS 10, no health issues, mild obesity and his vision is almost all gone. 
Bardet-Biedl Syndrome stories
MARY'S STORY
Please register your BBS loved one in CRIBBS!   [email protected] We have a Center of Excellence for Treatment of BBS, Located at the Marshfield Clinic, contact the director, Dr. Bob Haws, [email protected] for deta...
Bardet-Biedl Syndrome stories
HELLO!
Hello, my name is Bea. Maried with my great and loving husband, Marco. Together we have  three children. Tamara, Bart and Bas. Bart en Bas are twins. Tamara en Bas have BBS. It was great to see this map with all this people with BBS! I could show Ta...
Bardet-Biedl Syndrome stories
BARDET-BIEDL NETHERLANDS
Our oldest son has Bardet-Biedl Syndrome (BBS). We are setting up a family foundation in the Netherlands for BBS. Contact us: [email protected] Check our website: www.bardetbiedlsyndroom.nl

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Bardet-Biedl Syndrome forum

BARDET-BIEDL SYNDROME FORUM

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