Kristine

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Born to a mother of 16 years of age.  I was just a bit over 9 pounds.  I don't know anything more on my birth as my mother has been gone for 27 years.  The memories I have as a child that let me know that I was diffrent from everyone else were my clinic visits measuring just about everything.  Also the Ultrasounds.  I never really understood what I had until I was 12 (when the name of the syndrome was tossed around with a leg surgery I had to remove exess bone on my left leg). I never looked into the sydrome until I had my first child.

my syptoms are:

Maceroglossia (reduction at 2 years of age)

pits and creases in both ears 

Hemihypertrophy (mild)

Was just recently diagnosed with diverteculum of the kidneys.  I make stones faster then a rock quarry.