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Which advice would you give to someone who has just been diagnosed with Biotinidase Deficiency?
Advice for the newly diagnosed with Biotinidase Deficiency, written by people who have lived it. What they wish they had known on day one.
The best advice is in addition to having a great geneticist and doctor, do your own research. You’ll be providing the majority of details of the deficiency to the medical teams. It’s not a widely known disorder.
Posted Oct 30, 2017 by Tara 1600
