Family

Feb 24, 2016


I just found out that I have Bhds. As a family we found out that my brother had it and another rare genetic mutation when he found out that he had stage 4 kidney cancer. It took a while but I was finally able to be tested for both. I came back positive for Birt Hogg Dube Syndrome. I have had some testing and have a plan to keep an eye on everything. 

Know someone who should read this story? Share it

0 comments

Login or register to leave a comment


Birt-Hogg-Dubé syndrome causes

Which are the causes of Birt-Hogg-Dubé syndrome?

Birt-Hogg-Dubé syndrome advice

Which advice would you give to someone who has just been diagnosed wit...

Birt-Hogg-Dubé syndrome sports

Is it advisable to do exercise when affected by Birt-Hogg-Dubé syndrom...

Couple and Birt-Hogg-Dubé syndrome

Is it easy to find a partner and/or maintain relationship when you hav...

Living with Birt-Hogg-Dubé syndrome

Living with Birt-Hogg-Dubé syndrome. How to live with Birt-Hogg-Dubé s...

Latest progress of Birt-Hogg-Dubé syndrome

What are the latest advances in Birt-Hogg-Dubé syndrome?

Is Birt-Hogg-Dubé syndrome hereditary?

Is Birt-Hogg-Dubé syndrome hereditary?

Is Birt-Hogg-Dubé syndrome contagious?

Is Birt-Hogg-Dubé syndrome contagious?