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Living with Bladder Exstrophy. How to live with Bladder Exstrophy?

Living with Bladder Exstrophy: how patients cope day to day and stay positive - real experiences and practical tips.

Living with Bladder Exstrophy
2 answers
Si vive bene. Scoccia alle volte dover mappare tutti i bagni dei posti che si frequentano, ma la qualità della vita è veramente ottima. Si vive felici, si deve essere felici. La cosa che frena e può intristire è la difficoltà (a volte) di trovare un moroso/a che accetti in toto la condizione patologica, ma si trova sempre qualcuno che ci ami cosi come siamo

Posted Oct 11, 2017 by Giovanni 3050
Translated from spanish Improve translation
life with extrofia is a bit more complicated but you can live equally and be just as happy q the "normal" people, we must accept what q we have and learn to live with that, and already, the extrofia not does not exclude anything, we can do sports, study, go dancing, having a boyfriend, being a parent, ete,etc,etc

Posted Jul 13, 2017 by Lorena 1850

Living with Bladder Exstrophy

Bladder Exstrophy life expectancy

What is the life expectancy of someone with Bladder Exstrophy?

3 answers
Celebrities with Bladder Exstrophy

Celebrities with Bladder Exstrophy

1 answer
Is Bladder Exstrophy hereditary?

Is Bladder Exstrophy hereditary?

3 answers
Is Bladder Exstrophy contagious?

Is Bladder Exstrophy contagious?

3 answers
ICD9 and ICD10 codes of Bladder Exstrophy

ICD10 code of Bladder Exstrophy and ICD9 code

2 answers
Natural treatment of Bladder Exstrophy

Is there any natural treatment for Bladder Exstrophy?

3 answers
Bladder Exstrophy diet

Bladder Exstrophy diet. Is there a diet which improves the quality of life ...

3 answers
History of Bladder Exstrophy

What is the history of Bladder Exstrophy?

2 answers

World map of Bladder Exstrophy

Find people with Bladder Exstrophy through the map. Connect with them and share experiences. Join the Bladder Exstrophy community.

Stories of Bladder Exstrophy

BLADDER EXSTROPHY STORIES
Bladder Exstrophy stories
Hi all, I'm Tijo from India. Born with BE. Undergone 13 surgeries. Now I'm using caths for draining. I regularly wash my bladder. Some issues are there with my left kidney. But I feel better now.
Bladder Exstrophy stories
Jayse was born in September of 2011! He was our first born at a young age! Doctors didn't know what was going on when he was delivered. They had never seen anything like that before. Then we were sent to MUSC and the doctors their knew what to do and...

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Bladder Exstrophy forum

BLADDER EXSTROPHY FORUM

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