- Blue Rubber Bleb Nevus syndrome
- Interviews
Dianne's interview
How did all start?
From birth
Do you already have a diagnosis? How long did it take you to get it?
Yes, 14 years
For what medical specialties have you been treated? What has been the most useful specialty for your?
Operations to take veins out, injections to close veins, laser
What has been the most useful thing for you so far?
Controlling internal bleeding
What have been your biggest difficulties?
Bleeding
How has your social and family environment reacted? Have your social or family relationships changed?
Not known anything different as I was born with it
What things have you stopped doing?
Nothing
What do you think about the future?
Positive
So far, which years have been the best years in your life? What have you done during them?
Enjoyed all of my life, have a great family and lovely friends
What would you like to do if you didn’t have your condition?
Would still have done the same as it really doesn't stop me from doing what I want
If you had to describe your life in a sentence, what would it be?
Just love my life, very happy
Finally, what advice would you give to a person in a similar situation?
Always see your glass as half full not half empty and have a positive attitude. Believe in yourself, break down any barriers that stand in your way and do what makes you happy. My illness has not stopped me from doing anything.
