Which advice would you give to someone who has just been diagnosed with Branchio Oto Renal Syndrome?

Advice for the newly diagnosed with Branchio Oto Renal Syndrome, written by people who have lived it. What they wish they had known on day one.

De consulter un généticien pour que celui-ci réponde à toutes ses questions. On a beaucoup d'interrogations et c'est très angoissant.