Story about Camurati-Engelmann disease .

Camurati-Engelmann

Jan 23, 2019

By: McCauli

Year Condition Began: 1999


Hi my name is McCauli Alakayak I was born with a rare bone disease in 1999 and I wasnt diagnosed until 2004 by a Dr in Anchorage, Alaska my rare bone disease is called Camurati-Engelmann.

If you want to know more about me please message me Facebook Messenger Thank you!!!
Story about Camurati-Engelmann disease

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