CFC Syndrome
Error
My daughter Aubree was diagnosed with
Cardio-Facio-Cutaneus Syndrome/MAP2K1 in September 2014 at the age of 3. So far she's the only CFC child here in west Texas & only 1 (the geneticist) out of 8 of her specialist have ever heard of her Syndrome. No one here in our community has heard of it either. Joining this map in hopes of eventually meeting another CFC close to us.
You can learn more about CFC Syndrome at the CFC International web page at:
http://cfcsyndrome.org/
You can learn more about Aubree & her journey with CFC by following her public fb page at:
https://www.facebook.com/Our-journey-with-CFC-Syndrome-MAP2K1-1459186764375142/
0 comments
