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What is the life expectancy of someone with Carney Complex?

Life expectancy with Carney Complex: what research and real patients say, recent advances, and a medically reviewed summary with sources.

Carney Complex life expectancy
5 answers
It says in many of he articles you read approx 50 years old. I’m 58, I have family members in late 70’s and 80’s with Carney and they are still here. CNC is a relatively newly diagnosed condition, many Drs, Consultants, Specialists still haven’t heard of it. As knowledge of CNC spreads and more people are diagnosed earlier, due to the screening protocols they will follow they can get treatment for individual conditions sooner which will hopefully mean in the future that the lifespan of CNC patients will be expanded.

Posted May 27, 2019 by Angela 2510
At present It is 50 as screening for this complex is voluntary and therefore people do not know they have it.

Posted Aug 6, 2019 by Donna 1100
As on the top USA Medical Research Centre medical report suggests and says it states 40 years old generally.

Posted Aug 6, 2019 by Karen 1010
I am 58. With proper care and awareness I think we can live long productive and happy lives.

Posted Aug 27, 2019 by Dianedknox 100
I am 68 and tptally agree with what Diane has stated.

Posted Aug 28, 2019 by Kathie 400

Carney Complex life expectancy

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World map of Carney Complex

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Stories of Carney Complex

CARNEY COMPLEX STORIES
Carney Complex stories
I am writing in behalf of my daughter, 9 years at this time, who was diagnosed with Carney Complex.  At this age she has probable adrenal tumors because of her high cortisol.  She also has two small myxomas on her face.  She has lentignes on the w...
Carney Complex stories
I took Carney Complex at the age of 16, in 1995. I found out through my first serious boyfriend as felt lumps which were cysts in my breasts unknown to me. At that age breast cancer was unspoken and I being very young was unknown too breast cancer no...
Carney Complex stories
I have many freckles Severe headaches when exercising started 2017. Days play tennis. Headaches worsened until I couldn’t finish matches. Eventually Brain MRI revealed large pituitary tumor 3cmx4cm. Tumor was an adenoma prolactinoma. Cabergolin...

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