Kerilee Sheppard's interview
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How did all start?
Small bleed on brainstem that was misdiagnosed as laberynthitis. Then 3 months later a major bleed that resulted in brainstem surgery.
Do you already have a diagnosis? How long did it take you to get it?
No
For what medical specialties have you been treated? What has been the most useful specialty for your?
neurology psychology. physical therapy. Occupational theray. Accupuncture. Osteopathy
What has been the most useful thing for you so far?
Finding a knowledgeable neuro
What have been your biggest difficulties?
Fatigue. Lack of concentration. Headaches. balance. Double vision
How has your social and family environment reacted? Have your social or family relationships changed?
Marriage trouble. Kids super vigilent. Less social.
What things have you stopped doing?
I try everything in small doses.
What do you think about the future?
Often about children. I am ccm2.
So far, which years have been the best years in your life? What have you done during them?
30-40 but I am loving all my years and look forward to more.
What would you like to do if you didn’t have your condition?
Dance more...
If you had to describe your life in a sentence, what would it be?
Wonderful.
Finally, what advice would you give to a person in a similar situation?
Strength has to come from inside you.
