Skip to content

Wasn't supposed to Happen

May 22, 2018

By: Dawn

Year Condition Began: 2015


I was diagnosed almost 2 years ago. I have always had roaming numbness in my limbs since I was a teen. My father was diagnosed with CMT almost 30 years ago. However, back then they claimed he couldn't pass on the gene mutation to daughters only sons. So we all thought I was in the clear. Then, about 3 years ago My right leg started to go numb. Couldn't feel it and unlike before it didn't go away. It got worse. I started to loose mobility in my right foot, having foot drop and falling way more than I ever had. Finally saw a neurologist and the testing done and she concluded that I was experiencing the same symptoms as my father. Saw neurologists at the University of Aushwitz in Co and sure enough they came to the same conclusion. Since then, I have had to start wearing an AFO on my right leg. And my left leg is starting to go numb as well. The pressure palsy is getting worse and I have trouble sleeping at night because in have to constantly be moving around. I take meds and am working on exercises to keep what muscle mass I have and what mobility I have. Some days are harder than others. In have my Dad to look for when it's hard and my boys to keep me inspired and active.

Know someone who should read this story? Share it

0 comments

Login or register to leave a comment