Wasn't supposed to Happen

May 22, 2018

By: Dawn

Year Condition Began: 2015


I was diagnosed almost 2 years ago. I have always had roaming numbness in my limbs since I was a teen. My father was diagnosed with CMT almost 30 years ago. However, back then they claimed he couldn't pass on the gene mutation to daughters only sons. So we all thought I was in the clear. Then, about 3 years ago My right leg started to go numb. Couldn't feel it and unlike before it didn't go away. It got worse. I started to loose mobility in my right foot, having foot drop and falling way more than I ever had. Finally saw a neurologist and the testing done and she concluded that I was experiencing the same symptoms as my father. Saw neurologists at the University of Aushwitz in Co and sure enough they came to the same conclusion. Since then, I have had to start wearing an AFO on my right leg. And my left leg is starting to go numb as well. The pressure palsy is getting worse and I have trouble sleeping at night because in have to constantly be moving around. I take meds and am working on exercises to keep what muscle mass I have and what mobility I have. Some days are harder than others. In have my Dad to look for when it's hard and my boys to keep me inspired and active.

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