Which advice would you give to someone who has just been diagnosed with Charcot-Marie-Tooth Disease?

Advice for the newly diagnosed with Charcot-Marie-Tooth Disease, written by people who have lived it. What they wish they had known on day one.

Primero que no se desmoralice y luego que canalice su energía en el tratamiento y haga de la ejercitacion parte de su rutina diaria