Suffering from operations of cholesteatoma from the age of 2 amd now so far have had 24 operations from cholesteatoma being very aggressive. Had wall down surgery at 5year old and has had 3 recurrent cholesteatoma. Cholesteatoma needs to be highlighted more for people. It feels like the silent disease from where you lose your hearing and this disease is hidden and no one talks about how serious it is and effects family's so much.