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Which advice would you give to someone who has just been diagnosed with Cholesteatoma?
Advice for the newly diagnosed with Cholesteatoma, written by people who have lived it. What they wish they had known on day one.
Get that shiz out ASAP!
Posted May 16, 2017 by mag 1100
Research you surgeon carefully!! Every single cell of the cholesteatoma and every millimeter of affected areas must be strategically and carefully removed or IT WILL RETURN!
Posted May 16, 2017 by Cindy 1051
Educate educate educate yourself. Regardless of what doctors have told me I feel like I have learned far more be doing my own research and talking to other people with the disease.
Posted Jul 23, 2017 by Leah 2055
Have it removed before it breaks every bone in your ear, and infiltrates your brain like mine did.
Posted Aug 1, 2017 by Cindy 202
Dont be panic, find good ENT, have second opinion, catch surgery date
Posted Oct 4, 2017 by [email protected] 2000
Find a doctor you can trust! Neurotologist at a top hospital!
I would research my disease (I could have been a Librarian, the Internet is a plus for me); it helps to know what you are dealing with. Depending on your emotional state, antidepressants may be a good thing to take. I would not be reading stories/opinions of others on forums. Why? These are all personal stories, opinions, one person's level of pain tolerance (incidentally, none of my 4 surgeries were that painful; with the exception of how the 1st was mishandled ONLY during recovery in post-op. I don't think the surgery is that painful. I've had worse surgeries (broken humerus bone, incarcerated femoral hernia) and 2 natural childbirths with a baby 9.5 oz., and another 8.9 oz.
I would research my disease (I could have been a Librarian, the Internet is a plus for me); it helps to know what you are dealing with. Depending on your emotional state, antidepressants may be a good thing to take. I would not be reading stories/opinions of others on forums. Why? These are all personal stories, opinions, one person's level of pain tolerance (incidentally, none of my 4 surgeries were that painful; with the exception of how the 1st was mishandled ONLY during recovery in post-op. I don't think the surgery is that painful. I've had worse surgeries (broken humerus bone, incarcerated femoral hernia) and 2 natural childbirths with a baby 9.5 oz., and another 8.9 oz.
Posted Oct 18, 2017 by CTomaDue2MisDXBADdoc 3500
don‘t freak out. It‘s not the end of the world.
Ask you doctor what that desase means.
All will end up fine
Ask you doctor what that desase means.
All will end up fine
Posted Feb 27, 2018 by A. 2650
Are you comfortable with your doctor. Is he as concerned with your future health as you are. Seek a specialist in the field. Ask questions and make sure you understand the prognosis and your options.
Posted Sep 23, 2018 by Sandra 2900
Confidence in family friends as you will need them inside as you to move forward carrying this traumatic event with you.
Posted Oct 12, 2018 by glen 3500
Be strong and dont give up it will get better..it is not a death sentence
Posted Dec 6, 2020 by Joseph 2500
Get an MRI or a CT Scan done. Make sure that your ENT is compassionate and does NOT simply treat you as a number, as so many of them do.
Posted Dec 29, 2020 by Doreen 2600
go to an ENT (If you haven't already) avoid lakes ,rivers ,oceans etc. always where earplugs when going I water when you have ear infections use a heating pad and get rest
Posted Jan 24, 2022 by read 3000
