Hello to all affected CHM persons,
my name is Michael and I life in Geemany. I m the spokesman of the German CHM community and I work in different European and international organization to make CHM more public and find a therapy for CHM. Last year I was the first person in Germany, who received the genetherapy in Germany.
My approach is to have a international community for all CHM affected persons to exchange our expirience and to inform each other about research in our countries.
next year we will have our third international conference in Germany.
I invite you to get in touch with me.
please contact me by mail
[email protected]
i look forward to hear from you
Michael
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