Help us to help more people
  2. Chronic Cerebrospinal Venous Insufficiency
  3. Stories

Journey of my life so far!

Jun 23, 2026

Chronic Cerebrospinal Venous Insufficiency
Hi,

 

I've had two CCSVI treatments both successful which made me look further I was dx with MS in 2002 and finally was tested for Lyme in 2013 by Igenix which came back positive I've been on most abx for over 2years but my walking is still crap, I wall walk around apartment and use scooter for local trips.  I'm discovering a misdiagnosis is quite possible, my neuro and most Drs wont even discuss Lyme but as I moved to BC in Canada I was fortunate enough to find a LLND but ran out of money pretty fast.

Know someone who should read this story? Share it

Tell my story
0 comments

Login or register to leave a comment

Chronic Cerebrospinal Venous Insufficiency life expectancy

What is the life expectancy of someone with Chronic Cerebrospinal Veno...
Do I have Chronic Cerebrospinal Venous Insufficiency?

How do I know if I have Chronic Cerebrospinal Venous Insufficiency?
Celebrities with Chronic Cerebrospinal Venous Insufficiency

Celebrities with Chronic Cerebrospinal Venous Insufficiency
Chronic Cerebrospinal Venous Insufficiency prognosis

Chronic Cerebrospinal Venous Insufficiency prognosis
Chronic Cerebrospinal Venous Insufficiency symptoms

Which are the symptoms of Chronic Cerebrospinal Venous Insufficiency?
Chronic Cerebrospinal Venous Insufficiency advice

Which advice would you give to someone who has just been diagnosed wit...
Is Chronic Cerebrospinal Venous Insufficiency hereditary?

Is Chronic Cerebrospinal Venous Insufficiency hereditary?
Living with Chronic Cerebrospinal Venous Insufficiency

Living with Chronic Cerebrospinal Venous Insufficiency. How to live wi...