Help us to help more people
  2. Chronic Cerebrospinal Venous Insufficiency
  3. Stories

Journey of my life so far!

Jun 23, 2026

Chronic Cerebrospinal Venous Insufficiency
Hi,

 

I've had two CCSVI treatments both successful which made me look further I was dx with MS in 2002 and finally was tested for Lyme in 2013 by Igenix which came back positive I've been on most abx for over 2years but my walking is still crap, I wall walk around apartment and use scooter for local trips.  I'm discovering a misdiagnosis is quite possible, my neuro and most Drs wont even discuss Lyme but as I moved to BC in Canada I was fortunate enough to find a LLND but ran out of money pretty fast.

Know someone who should read this story? Share it

Tell my story
0 comments

Login or register to leave a comment

Chronic Cerebrospinal Venous Insufficiency treatments

What are the best treatments for Chronic Cerebrospinal Venous Insuffic...
Chronic Cerebrospinal Venous Insufficiency life expectancy

What is the life expectancy of someone with Chronic Cerebrospinal Veno...
Couple and Chronic Cerebrospinal Venous Insufficiency

Is it easy to find a partner and/or maintain relationship when you hav...
ICD9 and ICD10 codes of Chronic Cerebrospinal Venous Insufficiency

ICD10 code of Chronic Cerebrospinal Venous Insufficiency and ICD9 code
Is Chronic Cerebrospinal Venous Insufficiency hereditary?

Is Chronic Cerebrospinal Venous Insufficiency hereditary?
Do I have Chronic Cerebrospinal Venous Insufficiency?

How do I know if I have Chronic Cerebrospinal Venous Insufficiency?
History of Chronic Cerebrospinal Venous Insufficiency

What is the history of Chronic Cerebrospinal Venous Insufficiency?
Prevalence of Chronic Cerebrospinal Venous Insufficiency

What is the prevalence of Chronic Cerebrospinal Venous Insufficiency?