me/cfs journey

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diagnosed 2010, completely disabled since that time. i have improved slightly only to deteriorate again. i used low dose naltrexone for four years until it seemed to have no further good effects. since year three my health has steadily declined and i am less able to do simple tasks. i live alone and managing life is no small job. driving is doable once in a while for very short distances. i have low tolerance for anything strenuous, relapsing easily after exertion. pain has also increased and sleep is disturbed. i have come to a place of peace on an emotional and spiritual level yet i continue to hope for treatment or a cure as i deeply want to re-enter my pre-illness life asap. there are no "specialists" for treatment in my area and since i cannot travel distances, i am mostly left to fend for myself, doing the best i can do. my primary care provider knows nothing about this illness and seems skeptical. i am accustomed to this but do not like dealing with undereducated medical providers, it compounds already existing challenges. before i became ill i was a daily exerciser, worker, energetic and contributing member of society. 

 

all i can add is that i am a shadow of who i was, and a faint shadow at that. i desperately want to experience a change for the better and an eventual cure, sooner than later.

 

thank you,

sharon stewart