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Chronic Fatigue Syndrome / M.E. prognosis

Prognosis of Chronic Fatigue Syndrome / M.E.: quality of life, limitations and outlook, from research and from people who live with it.

Chronic Fatigue Syndrome / M.E. prognosis
6 answers
Prognosis is not good if u gave been ill as long as myself
If u are very very careful on onaet with support and right advice its better

Posted Jan 17, 2018 by Annette 2500
The prognosis is that you need to learn to live with it, live as comfortably as possible, and take care of yourself. Since our disease is not recognized as it really is, we spend most of our money on doctors, clinics, medicines and supplements on top of often not being able to make a living. Much of the money is wasted on things that don't work. Then we find something that works for us. The best way to live is to have a support system, even if it's small. If not human then animal. Beauty of some sort, things that make us happy should be in our home space.

I was 24 when I contracted it. That was over 30 years ago. Now facing my elder years I expect it to remain the same with some variations such as in the last 5 years I was diagnosed with cervical arthritis. Unless a cure is found it is not likely to get better. However I have begun taking new medications for head pain and for myalgia and nerves that have made a real difference.

Posted Mar 3, 2018 by Beti 2700
Some people seem to have remission but for others, this is a life-long disease.

Posted Aug 9, 2018 by cathy 2500
ME at first waxes and wanes [after the initial onslaught]
and then becomes progressive
it can't get better as we have no treatment yet, but once we do there will be hope

Posted Apr 6, 2019 by Fadra 2550
The condition can get better if you avoid further chemical/EMF exposure and take care of co-infections. It can get worse if you do not take care of yourself.

Posted Dec 12, 2019 by Joanna 6200
It could go either way. If you pace, rest and learn to say no, you can lead a fairly normal life. You push and it will get worse.

Posted Dec 21, 2019 by Pam 3550

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World map of Chronic Fatigue Syndrome / M.E.

Find people with Chronic Fatigue Syndrome / M.E. through the map. Connect with them and share experiences. Join the Chronic Fatigue Syndrome / M.E. community.

Stories of Chronic Fatigue Syndrome / M.E.

CHRONIC FATIGUE SYNDROME / M.E. STORIES
Chronic Fatigue Syndrome / M.E. stories
Mine is a story of gradual onset MECFS.  I was in my late twenties when my life began to 'not make sense'.   This was in 1976. I had always been active in sports and was fully engaged in being a wife and mother of two young preschool children.  M...
Chronic Fatigue Syndrome / M.E. stories
Mold Warriors by Dr Ritchie Shoemaker Gateway Press 2005 Chapt. 23 Mold at Ground Zero for CFS   The history of Chronic Fatigue Syndrome (CFS) begins in Incline Village, Nevada in 1985. In the medical history of CFS, each of the concepts applies-...
Chronic Fatigue Syndrome / M.E. stories
I wish that more MDs thought more carefully about CVID, PANS/PANDAS and EDS/MCAS.  If I had been diagnosed and treated earlier in life with Igs (instead of being called a hypochondriac and shuffled off to conventional psychiatry), I may not have end...
Chronic Fatigue Syndrome / M.E. stories
I was your typical average teenage girl always out running around. always out scaring my parents because yet again i was doing something crazy like climbing a really high tree, or riding my bike to close to the duck pond, or going fishing and forgeti...
Chronic Fatigue Syndrome / M.E. stories
Hi all Here is my story.... I started having problems with my knees when I was about 11yrs old, docs just thought it was growing pains and all they did was give me antiinflammatories. As I approached my mid teens I started sleeping in class althoug...

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Chronic Fatigue Syndrome / M.E. forum

CHRONIC FATIGUE SYNDROME / M.E. FORUM
Chronic Fatigue Syndrome / M.E. forum
Have you used Colloidal Gold and if so is it helping you at all?
Chronic Fatigue Syndrome / M.E. forum
 LBL did study of CO2 in air on thought and finds quite surprisingly, thought gets much worse if CO2 in outside air of 400ppmv, goes up from exhaled breath at 40,000 ppm, to raise room ambient to 1000ppmv or greater. Free reference: http://...
Chronic Fatigue Syndrome / M.E. forum
any supplement/homepathic med for adrenal fatigue insomnia (sudden awakening at night after 3-4 hours of sleep and then inability to fall asleep again)?

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