Story about Cleidocranial Dysplasia .

Being born with Cleidocranial Dyplasia

May 16, 2017

By: Zoe


I was diagnosed before I was born. My mother and my grandmother both have Cleidocranial Dyplasia. I have only met one other person outside of my family that had Cleidocranial dysphasia. I am 22 years old and haven't had a single needed surgery because I cannot afford it, even though my teeth and health are getting worse and wise day by day. Though I suffer with a lot of pain and ununderstanding people, I always make it though my days  There's not been a day I can think of that I don't have pain. I have worn a top partial plate since I was 13 (the same one I wear today). I wish I could afford a nee one, or just have a smile that is mine. One day. This condition has made me who I am and I wouldn't want to be anybody other than myself!!! I am learning more and more about my condition every day. My mind was blown when about a month or two ago a foundation was started "CCDsmiles". I never thought that my condition would ever get recognition, now that it has I have hope for everyone like me to get the medical attention needed.

Know someone who should read this story? Share it

0 comments

Login or register to leave a comment


Is Cleidocranial Dysplasia contagious?

Is Cleidocranial Dysplasia contagious?

Celebrities with Cleidocranial Dysplasia

Celebrities with Cleidocranial Dysplasia

Cleidocranial Dysplasia symptoms

Which are the symptoms of Cleidocranial Dysplasia?

Is Cleidocranial Dysplasia hereditary?

Is Cleidocranial Dysplasia hereditary?

Cleidocranial Dysplasia diagnosis

How is Cleidocranial Dysplasia diagnosed?

Natural treatment of Cleidocranial Dysplasia

Is there any natural treatment for Cleidocranial Dysplasia?

Latest progress of Cleidocranial Dysplasia

What are the latest advances in Cleidocranial Dysplasia?

Cleidocranial Dysplasia jobs

Can people with Cleidocranial Dysplasia work? What kind of work can th...