2. Coffin Siris Syndrome
3. Interviews

Christianne coenen's interview

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How did all start?

Before birth with corpus callosum agnesi

Do you already have a diagnosis? How long did it take you to get it?

Yes, 18 years

For what medical specialties have you been treated? What has been the most useful specialty for your?

Ear infections Scoliosis Open ductus botalli, not treated, just under control Autism?

What has been the most useful thing for you so far?

Scoliosis operation

What have been your biggest difficulties?

My behavior

How has your social and family environment reacted? Have your social or family relationships changed?

I like pets and horses more than people. I lake doing things by myself p.e reading

What do you think about the future?

I live wit 5 other young people who are also mentali disabled and i am very happy with my own appartment

If you had to describe your life in a sentence, what would it be?

Challenging

Finally, what advice would you give to a person in a similar situation?

Look at the strenghts and not to much at the things which are difficult

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