Story about Coffin Siris Syndrome .

My 6 year old son. Just been diagnosed with CSS.

Sep 20, 2018


My 6 year old son has just been diagnosed with Coffin Sirus syndrome after a looooong journey of getting to the bottom of his diagnosis. Finally we have an answer. I am his mother.

Know someone who should read this story? Share it

0 comments

Login or register to leave a comment


Latest progress of Coffin Siris Syndrome

What are the latest advances in Coffin Siris Syndrome?

Coffin Siris Syndrome prognosis

Coffin Siris Syndrome prognosis

Prevalence of Coffin Siris Syndrome

What is the prevalence of Coffin Siris Syndrome?

What is Coffin Siris Syndrome

What is Coffin Siris Syndrome

Coffin Siris Syndrome life expectancy

What is the life expectancy of someone with Coffin Siris Syndrome?

Is Coffin Siris Syndrome contagious?

Is Coffin Siris Syndrome contagious?

Is Coffin Siris Syndrome hereditary?

Is Coffin Siris Syndrome hereditary?

Living with Coffin Siris Syndrome

Living with Coffin Siris Syndrome. How to live with Coffin Siris Syndr...