My struggle with my rare diseases

Jan 23, 2019

By: Private

Year Condition Began: 1992


Hi, I have had Cold urticaria since I was a teenager, it got progressively worse when I had my son in 2003. Since then I have also developed cholinergic urticaria where I react and break out with heat or exercise. so haveing cold urticaria and cholinergic urticaria I find it very difficult regulating my body temperature to prevent cold urticaria when I get to cold or cholinergic urticaria when I get to hot. Due to these rare diseases there are so many things I can no longer do without endangering my life. With Cold urticaria I can’t swim, get caught in the rain, be In air conditioning where I can’t do something to warm myself up, I can’t touch anything cold, or have cold showers when it’s hot to cool down, or eat cold things like ice, I have to have warmed iv fluids and the list goes on. Cholinergic urticaria I can’t do anything physical that will increases my body temperature, so no exercise or hot baths and I have to keep myself cool on hot days. Due to these diseases I have shocking fatigue and every day is a constant struggle. I also have pressure urticaria but only mild at this stage. I also have a rare neurological condition called Misophonia where my brain interprets normal every day sounds as fearsome that triggers fight, flight and freeze response in my brain this is also a daily struggle. A lot of everyday things that most people take for granted I can’t do

Know someone who should read this story? Share it

0 comments

Login or register to leave a comment


History of Cold Urticaria

What is the history of Cold Urticaria?

Is Cold Urticaria contagious?

Is Cold Urticaria contagious?

Celebrities with Cold Urticaria

Celebrities with Cold Urticaria

Living with Cold Urticaria

Living with Cold Urticaria. How to live with Cold Urticaria?

Prevalence of Cold Urticaria

What is the prevalence of Cold Urticaria?

Cold Urticaria prognosis

Cold Urticaria prognosis

Cold Urticaria and depression

Cold Urticaria and depression

Cold Urticaria jobs

Can people with Cold Urticaria work? What kind of work can they perfor...