Short answer · Medically reviewed summary · Last updated: 2026-04-07

A colloid cyst is a benign, fluid-filled growth that typically develops in the third ventricle, a small chamber in the center of the brain. While these cysts are non-cancerous, they can cause significant health issues if they grow large enough to obstruct the flow of cerebrospinal fluid, leading to increased intracranial pressure. What exactly is a colloid cyst? A colloid cyst is a type of primary brain tumor characterized by a thin wall containing a gelatinous, "colloid" material.

2 people with Colloid cyst have shared their first-person experience on this question at DiseaseMaps.

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What is Colloid cyst

What is Colloid cyst? Plain-language, medically reviewed definition plus the lived reality told by patients.

What is Colloid cyst

A colloid cyst is a benign, fluid-filled growth that typically develops in the third ventricle, a small chamber in the center of the brain. While these cysts are non-cancerous, they can cause significant health issues if they grow large enough to obstruct the flow of cerebrospinal fluid, leading to increased intracranial pressure.



What exactly is a colloid cyst?


A colloid cyst is a type of primary brain tumor characterized by a thin wall containing a gelatinous, "colloid" material. Because they are located in the third ventricle of the brain, a colloid cyst is strategically positioned to potentially block the flow of cerebrospinal fluid (CSF). When this blockage occurs, it can lead to hydrocephalus—a buildup of fluid in the brain—which is the primary clinical concern associated with this condition. Currently, 292 individuals with a colloid cyst have joined the DiseaseMaps community to share their experiences and support one another.



Who is most likely to develop a colloid cyst?


Research indicates that a colloid cyst is a relatively rare condition, accounting for approximately 0.5% to 2% of all intracranial tumors. They are typically diagnosed in adults between the ages of 20 and 50, though they can be identified at any age. There is no strong evidence suggesting that these cysts are linked to specific geographic locations or environmental factors. While they are usually discovered incidentally during imaging for other issues, they are slightly more common in males than females in some clinical studies.



How does a colloid cyst affect the body?


The impact of a colloid cyst depends largely on its size and location relative to the foramina of Monro, the channels through which CSF drains. When the cyst obstructs these channels, the following symptoms may arise:



  • Headaches: Often sudden, severe, and sometimes positional (changing based on head tilt).

  • Nausea and vomiting: Frequently occurring in the morning due to pressure changes during sleep.

  • Cognitive changes: Difficulty with memory, concentration, or confusion.

  • Visual disturbances: Blurring or double vision caused by increased pressure on the optic pathways.

  • Unsteady gait: Balance issues resulting from pressure within the ventricular system.



Is a colloid cyst hereditary or genetic?


A colloid cyst is generally considered a sporadic event, meaning it occurs by chance rather than being passed down through families. While researchers continue to study the molecular origins of these growths, there is currently no well-defined genetic mutation that is routinely tested for to predict the development of a colloid cyst. Unlike some other brain tumors, they are not typically associated with hereditary cancer syndromes.



How does this differ from other brain growths?


A colloid cyst is distinct from other brain tumors because it is almost always benign (non-cancerous) and does not spread (metastasize) to other parts of the body. Its clinical significance is entirely determined by its physical presence and its ability to act as a "ball-valve," obstructing the drainage system of the brain. Unlike solid tumors, the primary treatment goal for a colloid cyst is to manage the obstruction of fluid rather than treating a malignancy.



Next steps



  • Consult a neurosurgeon if you have been diagnosed with a colloid cyst to discuss whether monitoring or surgical intervention is appropriate.

  • Maintain a symptom diary to track the frequency and intensity of headaches or cognitive shifts for your medical team.

  • Join the DiseaseMaps.org community to connect with others who have navigated the diagnosis and treatment of this condition.

  • Request a referral to a neurologist if you are experiencing unexplained, severe, or positional headaches.



Medical disclaimer: This content is for informational purposes only and does not constitute professional medical advice, diagnosis, or treatment; always seek the advice of your physician with any questions regarding a medical condition.



References



  • NIH Genetic and Rare Diseases Information Center (GARD) - Colloid Cyst of the Third Ventricle.

  • Orphanet: The portal for rare diseases and orphan drugs.

  • National Center for Biotechnology Information (NCBI) - PubMed: Clinical reviews on intracranial colloid cysts.

  • OMIM (Online Mendelian Inheritance in Man): Database of genetic disorders.

Medical disclaimer: This information does not substitute professional medical advice. Always consult your doctor before making health decisions.
Source: DiseaseMaps.org
3 answers
it is a genetic defect which forms in-utero and can be fatal if it blocks the flow of CSF through the brain

Posted Oct 12, 2018 by Julia 2733
It is an encapsulated cyst of colloid (a gel-like substance) that grows in the 3rd ventricle, foramen of monroe

Posted Oct 13, 2019 by dgustafs 2550

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Stories of Colloid cyst

COLLOID CYST STORIES
Colloid cyst stories
April 2014 I went to my PCP because I was tired all the time.  A previous sleep study said I had sleep apnea but I never had my septum repaired as I was instructed to do.  So he sent me to an ENT to finally have this done.  At the same time I aske...
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My journey began way back in 1986, I had just had a baby and then I began having monster headaches that would knock me off of my feet.  I had two children under the age of 3 and didn't have time to stop for very long.  My headaches subsided after a...
Colloid cyst stories
Diagnosed with a 4 mm Colloid Cyst in June, 2015. In January of 2015 began having severe headaches, confusion, memory problems, mood changes and passing out which eventually brought me to the point of being brought to the ER at which time they did a ...
Colloid cyst stories
I was diagnosed in 2013 with a 8mm colloid cyct due to a ER visit with symptoms of lost memory,vision disturbed,and massive migraine. I'm in wait and watch. It has grown to 9mm, 1 more mm and it will have to be removed via brain surgery. I have numer...
Colloid cyst stories
Diagnosed 2006 with emergency craniotomy 1 week later. Re-growth found in 2009. Yearly MRIs with 'watch & wait' approach. No symptoms at present (in 2016).

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