- Common Variable Immunodeficiency
- Interviews
Tracey's interview
How did all start?
I had pneumonia 4 times in one year.
Do you already have a diagnosis? How long did it take you to get it?
3 years
For what medical specialties have you been treated? What has been the most useful specialty for your?
IVIG made sicker and took 2 days to administer.
What has been the most useful thing for you so far?
Hizentra has kept my infection rate down.
What have been your biggest difficulties?
Fatigue, depression, & a back issue.
How has your social and family environment reacted? Have your social or family relationships changed?
Yes, many of my friends have moved on without me. My Family has been very supportive.
What things have you stopped doing?
Almost everything but that's because I can't stand or walk vwry far.
What do you think about the future?
I try not to worry.
So far, which years have been the best years in your life? What have you done during them?
The ones before I got sick.
What would you like to do if you didn’t have your condition?
Everything! Be social, work, & volunteer like I did before.
If you had to describe your life in a sentence, what would it be?
Difficult
Finally, what advice would you give to a person in a similar situation?
Before you get sick make sure you have extra disability insurance.
