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How do I know if I have Congenital Adrenal Hyperplasia (CAH)?

What signs or symptoms may make you suspect you may have Congenital Adrenal Hyperplasia (CAH). People who have experience in Congenital Adrenal Hyperplasia (CAH) offer advice of what things may make you suspicious and which doctor you should go to to receive treatment

Do I have Congenital Adrenal Hyperplasia (CAH)?
2 answers
chronic fatigue ,vomiting ,muscle wasting excessive weight gain in the abdominal areas

Posted Jun 12, 2018 by Dena 3550
There are two main versions. If you've got The classic which is the one I've got (aka the nasty horrible worst of the worst version) and you're more than a fortnight old and still alive then you'll know you've got it, although there are vast tracts of time when you feel almost well like most people you can be sure it will remind you of it's presence especially if you try and show off and push it a bit.
Then there is the non classic or secondary version which is on a spectrum from making you feel generally off and fatigued and sick most of the time all the way to just feeling mildly but constantly irritated. It is more common if you have a family member already with it, especially one with the classic version, but if you think you might have it, then ask for a blood test.
The classic and non classic can't overlap, that is, the non classic can't develop into the classic and (unfortunately) neither can the classic turn into the non classic.

Posted Jun 17, 2020 by Sarah L 1200

Do I have Congenital Adrenal Hyperplasia (CAH)?

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World map of Congenital Adrenal Hyperplasia (CAH)

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Stories of Congenital Adrenal Hyperplasia (CAH)

CONGENITAL ADRENAL HYPERPLASIA (CAH) STORIES
Congenital Adrenal Hyperplasia (CAH) stories
my childhood was spent in and out of the hospital for the first 5 years due to adrenal crisis and medication adjustments 6-12years more stable years the disease didn't slow me down I had my first and only child at 18 years old with severe complicatio...

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Congenital Adrenal Hyperplasia (CAH) forum

CONGENITAL ADRENAL HYPERPLASIA (CAH) FORUM
Congenital Adrenal Hyperplasia (CAH) forum
My son was born with CAH. He is 45 years old. After he turned 18 years old, the Great Team of  Doctors said good by and asked that we find a Physician familiar with CAH. We are still looking for one! My son has been treated by a doctor that doe...

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