Story about Congenital Sucrase Isomaltase Deficiency , Congenital Sucrase Isomaltase Deficiency.

Millie's Story

Apr 11, 2016

By: Millie

Congenital Sucrase Isomaltase Deficiency

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my name is Millie and I was diagnosed with SI at age 18 months as I didn't fall under the top four genetic mutations of CSID and it was too expensive to continue testing, but I follow the exact same diet and can't have sucrose or much starch. I have been sick since I was born and have to be vey strict with my diet.

We don't have access to sucraid in Australia so my mummy and daddy read every label to make sure I won't get sick but it's very hard and I still get sick sometimes and don't know why.

i am nearly 7 and learning to cook some of my own foods