7

Living with Congenital Sucrase Isomaltase Deficiency. How to live with Congenital Sucrase Isomaltase Deficiency?

Can you be happy living with Congenital Sucrase Isomaltase Deficiency? What do you have to do to be happy with Congenital Sucrase Isomaltase Deficiency? Living with Congenital Sucrase Isomaltase Deficiency can be difficult, but you have to fight to try to be happy. Have a look at things that other people have done to be happy with Congenital Sucrase Isomaltase Deficiency

Living with Congenital Sucrase Isomaltase Deficiency
2 answers
Live your life to the full, don't let the condition define you. You might have CSID but you are not CSID.
Forward planning your meals and meal prep is always helpful in avoiding unwanted symptoms.
Do your research into foods you can eat, try to discover new foods. Getting stuck in a 'food rut' only leads to eating known 'bad foods' out of boredom.
Learn to cook.

Posted Mar 8, 2019 by Simone 3215
Find your tolerance levels, try to stick within limits and enjoy living symptom free.

Posted Nov 15, 2021 by Tracey 3000

Living with Congenital Sucrase Isomaltase Deficiency

Congenital Sucrase Isomaltase Deficiency life expectancy

What is the life expectancy of someone with Congenital Sucrase Isomaltase D...

4 answers
Celebrities with Congenital Sucrase Isomaltase Deficiency

Celebrities with Congenital Sucrase Isomaltase Deficiency

2 answers
Is Congenital Sucrase Isomaltase Deficiency hereditary?

Is Congenital Sucrase Isomaltase Deficiency hereditary?

4 answers
Is Congenital Sucrase Isomaltase Deficiency contagious?

Is Congenital Sucrase Isomaltase Deficiency contagious?

4 answers
ICD9 and ICD10 codes of Congenital Sucrase Isomaltase Deficiency

ICD10 code of Congenital Sucrase Isomaltase Deficiency and ICD9 code

3 answers
Natural treatment of Congenital Sucrase Isomaltase Deficiency

Is there any natural treatment for Congenital Sucrase Isomaltase Deficiency...

3 answers
Congenital Sucrase Isomaltase Deficiency diet

Congenital Sucrase Isomaltase Deficiency diet. Is there a diet which improv...

3 answers
History of Congenital Sucrase Isomaltase Deficiency

What is the history of Congenital Sucrase Isomaltase Deficiency?

2 answers

World map of Congenital Sucrase Isomaltase Deficiency

Find people with Congenital Sucrase Isomaltase Deficiency through the map. Connect with them and share experiences. Join the Congenital Sucrase Isomaltase Deficiency community.

Stories of Congenital Sucrase Isomaltase Deficiency

CONGENITAL SUCRASE ISOMALTASE DEFICIENCY STORIES
Congenital Sucrase Isomaltase Deficiency stories
Diagnosed at age 6 in Melbourne. No known family history of disease. No sucraid available in Australia so diet only to treat condition. Normal lactase enzyme but sucrase and maltase levels extremely low or non existent.  
Congenital Sucrase Isomaltase Deficiency stories
My son has CSID. Diagnosed at 5 years of age. It's been a long journey to get to this point.  As there is no access to sucraid in Australia, we are purely trying to manage by diet alone.  As a mother, I will always be a voice for my young son and...
Congenital Sucrase Isomaltase Deficiency stories
my name is Millie and I was diagnosed with SI at age 18 months as I didn't fall under the top four genetic mutations of CSID and it was too expensive to continue testing, but I follow the exact same diet and can't have sucrose or much starch. I have ...

Tell your story and help others

Tell my story

Congenital Sucrase Isomaltase Deficiency forum

CONGENITAL SUCRASE ISOMALTASE DEFICIENCY FORUM
Congenital Sucrase Isomaltase Deficiency forum
Hello, Just curious, do any of you struggle with UHT milk? I am fine with all other dairy but for some reason UHT is a no go for me. For the life of me I can't figure out why, there are no added sugars. I'm wondering if this is a 'CSID thin...

Ask a question and get answers from other users.

Ask a question

Find your symptoms soulmates

From now on you can add your symptoms in diseasemaps and find your symptoms soulmates. Symptoms soulmates are people with similar symptoms to you.

Symptoms soulmates

Add your symptoms and discover your soulmates map

Soulmates map