Living with Congenital Sucrase Isomaltase Deficiency. How to live with Congenital Sucrase Isomaltase Deficiency?
Can you be happy living with Congenital Sucrase Isomaltase Deficiency? What do you have to do to be happy with Congenital Sucrase Isomaltase Deficiency? Living with Congenital Sucrase Isomaltase Deficiency can be difficult, but you have to fight to try to be happy. Have a look at things that other people have done to be happy with Congenital Sucrase Isomaltase Deficiency
Live your life to the full, don't let the condition define you. You might have CSID but you are not CSID.
Forward planning your meals and meal prep is always helpful in avoiding unwanted symptoms.
Do your research into foods you can eat, try to discover new foods. Getting stuck in a 'food rut' only leads to eating known 'bad foods' out of boredom.
Learn to cook.
Find people with Congenital Sucrase Isomaltase Deficiency through the map. Connect with them and share experiences. Join the Congenital Sucrase Isomaltase Deficiency community.
Diagnosed at age 6 in Melbourne.
No known family history of disease.
No sucraid available in Australia so diet only to treat condition. Normal lactase enzyme but sucrase and maltase levels extremely low or non existent.
My son has CSID. Diagnosed at 5 years of age. It's been a long journey to get to this point.
As there is no access to sucraid in Australia, we are purely trying to manage by diet alone.
As a mother, I will always be a voice for my young son and...
my name is Millie and I was diagnosed with SI at age 18 months as I didn't fall under the top four genetic mutations of CSID and it was too expensive to continue testing, but I follow the exact same diet and can't have sucrose or much starch. I have ...
Hello,
Just curious, do any of you struggle with UHT milk? I am fine with all other dairy but for some reason UHT is a no go for me.
For the life of me I can't figure out why, there are no added sugars. I'm wondering if this is a 'CSID thin...