I have a beautiful princess, named Dalilah Jocelyn. She was diagnosed with CDC at the age of 1. Its was very difficult at first to hear the news, but i love my princess and i am doing everything i can to help be healthy and strong and overall be a ha...
Rebecca was born in February 1991 and was my first child. We learnt of her condition when she was 5 weeks old. We didn't really understand a lot about it at the time but we did our research and not everything we read we really wanted to know at t...
I am Dad to a CdC girl. Our daughter was born in 2012. She was diagnosed during pregnancy after the 20 week scan (and various scans/tests). We already had a son (born 2008) and have since had another boy in 2014.
The first year was the hardest for u...
