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Story about Crouzon syndrome .

Cruzon Syndrome.

Feb 24, 2016

By: Sharon Snipe

Crouzon syndrome
I was born with Cruzon Syndrome,there is 4 generations in my family,me being 2nd.

I had a lot of teasing at School,didn't have any confidence and didn't know anyone else with it.

Two of my children have it,and three of my Grandchildren,and two have Craniostynosis,and have lots of operations,which have been a big improvement,for looks and confidense.

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