SuperWill
Apr 19, 2016
By: Katie Messer
Error
SuperWill (William) is our grandson, born 5th January 2016 with Crouzon Syndrome, talipese and breathing difficulties. At nine weeks he developed viral and bacterial meningitas.
He is a fighter and the whole family are wishing him well in his long journey ahead. He has to go to Birmingham Hospital in England for a MRI scan and to be assessed next week so worrying times are ahead, but to come this far he is indeed our SuperWill.
From SuperWills loving grandma Katie
x
0 comments
Login or register to leave a comment
Living with Crouzon syndrome. How to live with Crouzon syndrome?
Crouzon syndrome diet. Is there a diet which improves the quality of l...
How do I know if I have Crouzon syndrome?
Is it advisable to do exercise when affected by Crouzon syndrome? Whic...
How is Crouzon syndrome diagnosed?
What is the prevalence of Crouzon syndrome?
Which are the symptoms of Crouzon syndrome?
