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Story about Crouzon syndrome .

SuperWill

Apr 19, 2016

By: Katie Messer

Crouzon syndrome
SuperWill (William) is our grandson, born 5th January 2016 with Crouzon Syndrome, talipese and breathing difficulties. At nine weeks he developed viral and bacterial meningitas.

He is a fighter and the whole family are wishing him well in his long journey ahead. He has to go to Birmingham Hospital in England for a MRI scan and to be assessed next week so worrying times are ahead, but to come this far he is indeed our SuperWill.

From SuperWills loving grandma Katie

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