Some of my family & my friends
Pain medication
HBOT
Rest
I have EDS also!
LDN
Neurogram that led to nerve decompression surgery
Neurogram that led to nerve decompression surgery
Pain Management physician
Combo therapy: monthly dual band cold fusion laser treatment with daily medications
desensitization therapy
My determination to not let this disease control/beat me.
Moved to milder climate
Meeting other sufferers in a Pain Rehab Clinic
warm compresses
Fidgets. Keeping my hands busy so that I don't focus on the pain so much.
Kids and family
oxycodone and Lyrica
When I have drink my sleeping pill,and sleep all night after 5 months :)
Unwavering love and support of my Husband
Water therapy
My current meds, without the stimulator and meds I would be unable to move
Doctor Who and Star Wars
Finding a hobby that helps occupy my mind
Stationary Bike, Heat
Stories: Bringing Hope, Awareness, & Experiences https://www.facebook.com/InspirationalStoriesForCrpsRsd/notifications/
Family support
Many, many medications allow me some functionality
when my family takes the time to understand my disease.
My supportive husband
His inspirational RN nurse & my compassionate infusion buddies
Green tea
A primary care MD who understands my pain & orders a low dose opoid helps me on bad days
Books, audio books when I'm too sick to read.
My partner was understanding and supportive , this helped me through my worst of times and the best of times.
Don't let CRPS rule my life
My work
My fur babies
Exercise
Getting suspension on my wheelchair
Mindfulness meditation helps me separate the emotional and physical components of pain.
SCS - best surgery to limit my leg spasms so I could have a major ankle surgery
I never heard of this disease before I got it
Elevating my leg
I have had two types of SCS. Just had a complete revision surgery. Went from wire leads to paddles. I love it.
Physical Therapy, because without it I think I would not be able to move my arm.
Buprenorphine
My heating blanket is something I can’t live without. I got through close to 6 a year cause they don’t last anymore but totally worth it. I also have a hot towel warmer, wax machine, heating pads, heated jacket, shirts and heating packs.
trying to work out
New pain doctor locally