Fentanyl patches. I use 150 mcg.
Wear a spandex brace on my ankle when needed.
Neurostimulator; I have two (upper body and lower body)
My SCS
Faith
Swimming/water aerobics up to 3 hours per day. Strength, mobility and pain desensitization.
Ketamine infusions
My family and friends that always support me.
The support of my fiancé and friends help me to stay positive and keep my spirits lifted on my low days
Do your research & be your own advocate!
GP's knowing what CRPS is
Physical/desensitization and pain management therapy
Kratom is the only thing I've ever tried that puts the fire out for a little while and it's natural and won't harm my body.
Great doctors
Gluten free diet
Hot water bottle
The combination of drugs and adapting depending on the general pain level.
Finally found the right Dr who knows how to treat my RSD, saved my life!
Ketamine infusions in patient
Started CRPS charity in UK
Clean diet helps
Ketamine
A good and understanding pain specialist
my family
I was put on Neurontin 3 times a day
I was put on Neurontin 3 times a day
Positive attitude
Ketamine Infusions
Warmer weather
Pilates
botox/lidocaine/marcaine injections
Being able to talk and get together with family and local friends.
My SCS implant.
for me, narcotics are the only things that make it possible to do almost anything
Early DX
DR. Katinka van den Merwe.
Physical therapy helps with muscle tightening (contracture). I get tightening of my muscles from the arch of my feet to my neck. The ones in my calf are so tight that they pull the fibula out of alignment. My toes in my right foot already try to contract
My Dogs, comforting me
Learning to meditate thru some of the pain.
Breathing
Biweekly Sympathetic Nerve Blocks
Those who have been there for me
Using gabapentin took the nerve pain down 2 -3 notches.
Lyrica
Be Realistic
Epsom salt baths
Pain management
1 week of continuous epidural catheter
Medicine
Medicine