_I was diagnosed with this disease in 2012. Although I think I might have possibly had it since 2010. I wasn't diagnosed until the obvious symptoms started. _
_I have had intense physio, numerous assorted injections and too many different medications to count. All before the diagnosis, physio and injections I had just helped to spread the intense pain._
_I still haven't quite come to terms with it yet. In denial prehaps, I don't want it... _
_I have lost many friends, have become isolated, rarely go out._
_I can't hug or be a proper Nanny to my Grandchildren, I think for me this hurts more than the pain._
_I just want it too go away, I don't really see that happening any time soon, if ever._