Story about CRPS Complex Regional Pain Syndrome .

All I did was walk with my baby

Oct 29, 2016

By: Shreen


Hi I'm Shreen and my battle started 27 months ago.   It was our wedding anniversary and my husband surprised me and said we were going out for lunch.  We took our son to his nan's and I said that I'd take him round the block to get him off to sleep......this turned out to be the worst thing I ever did.  I was on my way back with little Harry fast asleep and that's when I fell. A loose paving slab, the pram went on over one end and the other end shot up to which I fell over this.  This was to be just the start!

After hopping back to my in laws my husband rushed me off to a&e where they confirmed that I'd fractured my ankle, I'd actually snapped a chunk of bone off my ankle joint. They put me in a cast and off I went in agony.  10 days later I developed two DVT'S, one above the knee and another below the knee and was immediately taken out of cast and told not to weightbear at all.  18 weeks went by and still in constant pain and still out of cast and still no improvement.  I demanded at that point to be referred to a foot and ankle specialist which I was.

My new consultant was brilliant, instantly booked me in for a MRI which revealedthat I needed to have a decompression of the latral ligament done asap. Operation out of the way but still in immense pain which no painkillers could calm, I then had two further operations on my achilles tendon to lengthen it which unfortunately have failed.  I'm now left with limited movement in my ankle, no muscle in my calf and my ankle /leg is very unstable along with the fact my foot is constantly cold and blue, I can't wear anything on my foot as the pain is horrendous.  I've been under pain management who have tried everything but nothing has worked and the pain is completely covering my whole foot now.
I'm now waiting for a below the knee amputation, some of you may think that's drastic but for me it's the only way to get back my life. You see I can't take my son's out, mostly house bound and if I don't do something now it'll spread to other limbs and organs and basically leave me bedbound.  My surgeon agrees with me that I have to do this and this will be happening in the New Year of 2017! New year, new life

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