First patient born with CMTC in Norway -2001.
Mar 4, 2016
By: Husa
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Our daughter, JH, was born with CMTC (first one in Norway!).
From the age of 12 she has had serious complications and are very sick. We are convinced that her conditions are due to the CMTC, and have fought for many years to get her the help she needs. We can help others by sharing our experience and hopefulle guide you if needed.
We are about to start an organisation in Norway for patients and their families, website www.cmtc.no are to be launghed in 2016.
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