My story of Cyclic neutropenia
May 21, 2017
By: Adam
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my story is...
I was diagnosed at the age of 4 in 1997 with Cyclic neutropenia due to the ELA2 gene
Now at the age of 23 I have been on GCSF injections for roughly 3 years now and they are given for 5 days every 21 days to follow my cycle
As far as I am aware I am the only one in the north east of england to be diagnosed with the disease but it would be really interesting to hear other people's story's on how they continue there day to day life living with this condition
As people will no that have Cyclic neutropenia we are 1 in a million people according to general statistics I have read.
Thanks for reading :)
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