Cvs diagnose

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I myself have been dealing with my illness for a long time and I have only now received my diagnosis, but as it is a very rare disease it is difficult to get the right help. There are no specialists in CVS in Denmark, and I have therefore had to seek help, knowledge and support abroad, especially in the USA. It is one thing to finally be diagnosed, but the real problem comes afterwards, when it becomes very difficult to get qualified help. The struggle to get the help you are entitled to is hard, and you are going to be very much alone with it - both to make everyday life work fairly well, but perhaps even more the frustration of being thrown around in a hospital system where There is not much incentive to work across departments. With this group, I would like to try to find other CVS diagnosed people in denmark and Scandinavia where you can talk openly about your challenges, share experiences both about the daily management of the symptoms and episodes, but also about how to navigate the hospital system and fight for our rights for processing claims. I have not yet found any other CVS diagnosed in Denmark, but my hope That we can find each other and hopefully not feel so alone in our illness processing. . I have not yet found any other CVS diagnosed in Denmark, but my hope is that this group can help find each other and hopefully not feel so alone in our illness.