Story about Cystic Fibrosis .

My Cystic Fibrosis story

Jun 26, 2026


I was diagnosed with Cystic Fibrosis a few weeks after my birth, my mum was devastated she had no idea what this terrible illness was. They told her that I probably wouldn't reach adult hood and would not be able to do the same things as my peers. 

How wrong they were! I'm now 18 years old and not had one hospital admission to date! I feel so incredibly lucky and without my condition I would not have met all my wonderful team at my local hospital. My lung function has always been high around 94% or higher which is extremely good. My mum never wrapped me in cotton wool and let me do all the things my friends were doing I went to my local comprehensive and sat next to kids with colds without worry. Being exposed to these real world conditions have made my lungs stronger in my opinion.I don't ever wish that I didn't have this condition as without it I may not be the person I am today, I may not have it easy when I get older and I know at some point a transplant may be my only option but for now I am living for the moment, and enjoying every second of it!!

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