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What is the prevalence of Desmoid Tumor?

How many people does Desmoid Tumor affect? Does it have the same prevalence in men and women? And in the different countries?

Prevalence of Desmoid Tumor

The prevalence of Desmoid Tumor, also known as aggressive fibromatosis, is relatively rare. It is estimated to occur in approximately 2 to 4 individuals per million population per year. Desmoid tumors are noncancerous growths that arise from connective tissue cells. They can occur in various parts of the body, such as the abdomen, extremities, and trunk. Although they are not malignant, Desmoid tumors can be locally aggressive and cause significant morbidity. Treatment options include surgery, radiation therapy, and targeted therapies. Early diagnosis and appropriate management are crucial for optimizing outcomes.



Desmoid tumors are rare, locally aggressive, and non-metastatic neoplasms that arise from connective tissue. They can occur in any part of the body, but are most commonly found in the abdominal wall, shoulder girdle, and extremities. The exact prevalence of desmoid tumors is difficult to determine due to their rarity and variability in clinical presentation.


Desmoid tumors are estimated to occur in approximately 2-4 individuals per million population per year. They can affect individuals of any age, but are most commonly diagnosed in young adults between the ages of 15 and 60. There is a slight female predominance in the incidence of desmoid tumors.


Although desmoid tumors are generally considered benign, they can be locally invasive and cause significant morbidity. The growth pattern of desmoid tumors can vary, with some tumors showing slow growth and others exhibiting more aggressive behavior. Treatment options include surgical resection, radiation therapy, and medical management with nonsteroidal anti-inflammatory drugs (NSAIDs) or targeted therapies.


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Translated from spanish Improve translation
According to research, 1 out of every 250000 or 1 of each 500000

Posted Sep 6, 2017 by Maria 1910

Prevalence of Desmoid Tumor

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After I had my youngest child in 2015 I noticed I wasn't healing properly. I was 27 and had 2 kids previously so I knew something wasn't right. I got an ultrasound and they found a small mass in my abdominal area near the ribs under my breast. They ...
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Feb 2018: I woke up with a very sore right upper leg after lying on a hard sofa. Since then I'm only able to sleep on my back. June 2018: I started noticing an annoying sting after working out on the treadmill for half an hour. Since then I can only...

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