Lots of abdominal pain, it is flat and has finger like things on it reaching out and they believe it has ahold of my uterus. I'm on pain medication.

There are 39 people in the Desmoid Tumor map

51 people with Desmoid Tumor have joined the DiseaseMaps community map. They have shared 172 first-person answers and 5 stories about living with the condition.

Desmoid Tumor life expectancy

What is the life expectancy of someone with Desmoid Tumor?

1 answer
Celebrities with Desmoid Tumor

Celebrities with Desmoid Tumor

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Is Desmoid Tumor hereditary?

Is Desmoid Tumor hereditary?

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Is Desmoid Tumor contagious?

Is Desmoid Tumor contagious?

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Desmoid Tumor top 25 questions

Statistics of Desmoid Tumor

39 People in the map
Statistics of Desmoid Tumor
Healthcare professionals

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Organizations of Desmoid Tumor

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DESMOID TUMOR

Synonyms:
Abdominal pain, feeds off of estrogen.

Types:
Fibromatosis

SYSTEMS AFECTED

Digestive system
Digestive system
Reproductive system
Reproductive system

Symptoms

  • pain

Treatments

  • I'm on Tamoxifen, Megestrol orally and then a Zolodex injection every 3 months.

    • Specialist who treat it

    Colorectal surgery/Proctology Gastroenterology Oncology Palliative Medicine/ Care

    Who can help you

    JenniJenni

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    Stories of Desmoid Tumor

    STORY
    Desmoid Tumor stories
    MESENTERIALE DESMOID TUMOR TYPE FIBROMATOSE
    Desmoid Tumor stories
    ERICA'S STORY
    Desmoid Tumor stories
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    Statistics of Desmoid Tumor

    5 people with Desmoid Tumor have taken the SF36 survey. Mean of Desmoid Tumor is 1991 points (55 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

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