8
Which advice would you give to someone who has just been diagnosed with Diabetes insipidus?
Advice for the newly diagnosed with Diabetes insipidus, written by people who have lived it. What they wish they had known on day one.
Not to worry about its easily managed once u get the hang of it, it can be hard to regulate It at times like if have an upset tummy just drink to ur thirst & get ur sodium checked quite often especially in the summer months
Posted Mar 8, 2017 by Colette 1000
The only ting that helped me was geting my medication. I would say... Enjoy your probably first whole night of sleep in a really long time!
Posted Mar 8, 2017 by Johanna 1000
Watch your water intake and get a good endocrinologist
Posted Mar 8, 2017 by Veronica 1000
Ask your doctor to write your prescription for more than you need that way you always have medicine available and won't run out. My first doctor did that for me and I've been very thankful. In my experience, the amount of medicine you need depends on how you are feeling. If you are sick or stressed out you may need more. Intense activity also makes me need more. As does weight gain. Find a doctor that will work with you and help you to find your range and to understand how you can safely dose yourself.
Posted Mar 8, 2017 by Marisa 1000
First, learn to say "I am not a diabetic." Because of having the word "Diabetes" in the name, everyone (I am not exaggerating) assumes that you have diabetes mellitus. Next, do some research and make sure you can explain what DI is and how it is completely different from Diabetes mellitus. Find an endocrinologist who knows DI very well (you will constantly be educating lesser versed medical staff what DI is and how it affects you). Try not to be irritated when medical professionals ask about your insulin levels and gently remind them that you do not have diabetes mellitus, and that Diabetes Insipidus has NOTHING to do with insulin. Educate them on the differences between DM and DI. Make sure they understand you are NOT a diabetic!
ESPECIALLY IF YOU HAVE A MEDICAL EMERGENCY: make sure you have talked to ALL the Dr.s and nurses helping you and that they understand you DO NOT NEED INSULIN! Check and double check before going into surgery that they do not put a diabetic sticker on your chart! I had surgery a couple years ago and the nurse checking me in said that they had put a diabetic sticker on my chart by mistake... I am thankful he caught the mistake. Somewhere, someone made a clerical error and it could have greatly impacted my health for the negative. You are your best advocate! Make sure anyone cutting you open understands that you are NOT a diabetic! ;)
Once more, say it with me: " I am NOT a diabetic!"
ESPECIALLY IF YOU HAVE A MEDICAL EMERGENCY: make sure you have talked to ALL the Dr.s and nurses helping you and that they understand you DO NOT NEED INSULIN! Check and double check before going into surgery that they do not put a diabetic sticker on your chart! I had surgery a couple years ago and the nurse checking me in said that they had put a diabetic sticker on my chart by mistake... I am thankful he caught the mistake. Somewhere, someone made a clerical error and it could have greatly impacted my health for the negative. You are your best advocate! Make sure anyone cutting you open understands that you are NOT a diabetic! ;)
Once more, say it with me: " I am NOT a diabetic!"
Posted Mar 14, 2017 by Emily 1000
