2. Dystonia Disorder
3. Interviews

Amanda's interview

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How did all start?

I passed out in a mall. And started having seizures.

Do you already have a diagnosis? How long did it take you to get it?

Yes, it took 3-5 years

For what medical specialties have you been treated? What has been the most useful specialty for your?

Neurology. Psychology. My neurologist that specializes in movement disorders is most helpful

What has been the most useful thing for you so far?

Clonazapam

What have been your biggest difficulties?

When having an episode, walking

How has your social and family environment reacted? Have your social or family relationships changed?

Fine. Very supportive

What things have you stopped doing?

Working

What do you think about the future?

Hope for a cure

So far, which years have been the best years in your life? What have you done during them?

Now Been married for 11 years. We go on trips and to shows

What would you like to do if you didn’t have your condition?

Work

If you had to describe your life in a sentence, what would it be?

A good, fun life

Finally, what advice would you give to a person in a similar situation?

Take it one day at a time. Live your best life

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