- Dystonia Disorder
- Interviews
Amanda's interview
How did all start?
I passed out in a mall. And started having seizures.
Do you already have a diagnosis? How long did it take you to get it?
Yes, it took 3-5 years
For what medical specialties have you been treated? What has been the most useful specialty for your?
Neurology. Psychology. My neurologist that specializes in movement disorders is most helpful
What has been the most useful thing for you so far?
Clonazapam
What have been your biggest difficulties?
When having an episode, walking
How has your social and family environment reacted? Have your social or family relationships changed?
Fine. Very supportive
What things have you stopped doing?
Working
What do you think about the future?
Hope for a cure
So far, which years have been the best years in your life? What have you done during them?
Now
Been married for 11 years. We go on trips and to shows
What would you like to do if you didn’t have your condition?
Work
If you had to describe your life in a sentence, what would it be?
A good, fun life
Finally, what advice would you give to a person in a similar situation?
Take it one day at a time. Live your best life
