Story about Dystonia Disorder , Anemia.

My climb back up the ladder from a few near death experiences

Jun 23, 2026


.too long to tell. started with fibromyalgia, anemia, bobble head, swallowing difficulties, bowel issues, chronic pain. i had 3 sessions in ICUfor pneumonis  with broncial washes every day, IGIV 6 days in a row , 3 weeks, then 3 weeks rehab, 6 month later 2 weeks ICU, 9 month later 12 days in hospital for pneumonia and pain contol. I have to take my Rx's with pudding, apple sauce, food was pureed for a few years, now i have learned how to swallow in a different  way. its Rx's with a thickend shake such as ensure. I eat lots of soup (homemade)..and soft food with a sip of liquid every mouthful. We  do not go out to dinner but eat at home every day. Choaking is my worse fear, which can lead to aspiration and then pneumonia. I use O2 daily, nebulizer as needed, and a neck collar for the bobble head. But I am blessed everyday  I believe God has a plan and I will follow it. 

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